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Objectives: To assess the health-related quality of life (HRQOL) of patients with mucopolysaccharidosis (MPS) and their caregivers and to quantify the disease-related costs from a societal perspective. Methods: In the context of a multi-country study of rare diseases (BURQOL-RD project), a cross-sectional survey was performed among MPS patients in seven European countries. Data on demographic char

The Earthshine telescope project is a collaborative effort between Lund Observatory (LO) in Sweden and The Institute of Meteorology in Demark (DMI) with the purpose of constructing one or more robotic telescopes to record the albedo of the Earth over a long time. The objective is to measure long-term development of the global cloud coverage and reflectivity for climate modeling. A 1% change in the

The principle of force feedback is to design a sensor as a feedback system where the action of the measured variable is compensated by a force generated by feedback. Force feedback has contributed significantly to improve the quality of sensors. A characteristic feature of MEMS devices is that they are subject to random disturbances, such as Brownian motion, Johnson-Nyquist noise, and tunneling no

A moral Historiography without Moralism. Critical views on modern Church History Efforts for realism without moral judgments have identified morals with present law. This leads to positivistic positions, where moral questions are being answered with references to historical legal situations only, without moral implications. With the political changes 1989–1990 a change in historiography followed.

To provide for a high QoS in a cellular network, each call should be assigned to its preferred cell and priority given to already ongoing calls. Herein, a combined speed-sensitive layer selection method and dynamic guard channel scheme, called CLARR, for use in hierarchical networks, is introduced. To reduce the complexity, partially the same speed estimation and measurement procedures are applied

Quantum annealing is a promising approach for obtaining good approximate solutions to difficult optimization problems. Folding a protein sequence into its minimum-energy structure represents such a problem. For testing new algorithms and technologies for this task, the minimal lattice-based [hydrophobic (H) or polar (P) beads] HP model is well suited, as it represents a considerable challenge desp

The COVID-19 pandemic disrupted the ‘normality’ of our everyday lives, but it did so in the wake of a series of crises within the capitalist system, which worsened the conditions for a liveable world for many while benefitting only a few. In response to these crises, the contributions in this issue highlight the diverse ways activists continue to organise in the midst of social, political, and eco

Brandskum som innehåller per- och polyfluorerade ämnen (PFAS), på engelska Aqueuous Film Forming Foam (AFFF), är en av de främsta källorna till föroreningarna i Sverige. Grundvattenförorening orsakat av användandet av AFFF under brandövningar har undersökts i Kallinge, Blekinge. I området har grundvattnet använts som råvatten vilket resulterat i förhöjda halter av PFAS i dricksvattnet. Liknande faAqueuous Film Forming Foam (AFFF) containing Perfluoroalkyl and Polyfluoroalkyl Substances (PFAS) is one of the major sources of groundwater contamination in Sweden. Groundwater contamination caused by the use of AFFF in correlation to fire training events was investigated in Kallinge, Sweden. At the site groundwater was previously used as a drinking water source consequently affecting the inhabit

An autonomous service robot should be able to interact with its environment safely and robustly without requiring human assistance. Unstructured environments are challenging for robots since the exact prediction of outcomes is not always possible. Even when the robot behaviors are well-designed, the unpredictable nature of the physical robot-object interaction may lead to failures in object manipu

Background: Policy advocacy (PA) in European healthcare has a strong tradition promoting evidence-based policies. Key organisations, including the European Observatory on Health Systems and Policies, the WHO’s Evidence-Informed Policy Network, and the OECD play pivotal roles in integrating research into policymaking. Objectives: To assess the involvement of European Family Medicine (FM) Associatio

Prior research has shown that companies in various industrial contexts need to achieve both exploitation of current knowledge and technologies to make profits today, and exploration of new knowledge and technologies to adapt to changing conditions and prepare for tomorrow’s demands. The capacity to achieve both exploration and exploitation is especially problematic in project based organizations d

Background: For decades, early allogeneic stem cell transplantation (HSCT) has been used to slow neurological decline in metachromatic leukodystrophy (MLD). There is lack of consensus regarding who may benefit, and guidelines are lacking. Clinical practice relies on limited literature and expert opinions. The European Reference Network for Rare Neurological Diseases (ERN-RND) and the MLD initiativ

PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.METHODS: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB ed

Background: Musculoskeletal disorders (MSK) are a global burden causing significant suffering and economic impact. Systematic identification and targeting of research questions of highest interest for stakeholders can aid in improving MSK disorder knowledge and management. Objective: To obtain Swedish MSK researchers' opinions and views on a collaborative Swedish MSK network (SweMSK) and identify

Many organisms fail to adjust their phenology sufficiently to climate change. Studies have concentrated on adaptive responses within localities, but little is known about how latitudinal dispersal enhances evolutionary potential. Rapid adaptation is expected if dispersers from lower latitudes have improved synchrony to northern conditions, thereby gain fitness and introduce genotypes on which sele

Execution trace graph analysis of dataflow programs has been demonstrated to be an effective way for exploring and optimizing the design space of many core applications. In this work a novel transformation from the execution trace graph to an event driven linear system is proposed. It is also illustrated how the trace space of can be effectively reduced and well known system control techniques can